The UK Paediatric FH Alliance
The UK Paediatric FH Alliance is a collaborative network for healthcare professionals specialising in the identification and management of paediatric familial hypercholesterolemia (FH). Our mission is to enhance patient outcomes through education, networking, and the sharing of best practices.
Goals:
- Improve patient outcomes through education and the dissemination of evidence-based information.
- Build a community of experts dedicated to paediatric FH.
- Focus on advancing FH identification and management in children.
Activities:
- Clinical Experience Sharing
- Case Discussions
- Research Reviews
- Educational Sessions/Webinars
- Collaborative Initiatives
Membership: Open to all healthcare professionals involved in paediatric FH care, including:
- Nurses
- Paediatricians
- Cardiologists
- Genetic Counsellors
- Dietitians
- Researchers
Engagement:
- Bi-annual Meetings to ensure regular communication and engagement.