For someone who has recently been found to have FH, the news can have a profound effect on the individual and their family. To be able to read about someone who has experienced the difficulties of living with FH on a daily basis, may be just one way of helping the newly diagnosed individual.

It is also helpful for nurses, dietitians and GP’s to learn more about genetics and to help them understand the effect that FH can have on people’s lives.

For all these reasons, we have asked several people who have FH or who have direct experience of the effects of FH, to tell us their own stories.